Do I have to be recently bereaved to reach out?

Everyone is welcome, whether your loss was weeks ago or many years ago.

I’m not sure I’m ready to be around people. What are my options?

You can start by messaging us privately, receiving updates, or coming to an event and simply listening.

Do you provide grief counseling?

We’re not a clinical counselling practice, but we do provide community support—space to connect with others who understand ALS loss. If you’d like professional grief counselling, we can help you find a therapist or counselling service that fits your needs. We’re also starting to offer therapy/counselling stipends for families affected by ALS—reach out to learn more.

Can I bring a friend or family member?

Of course. Many people feel safer coming with someone.

Bereavement Support After ALS

If you’ve lost someone to ALS, you are not alone—and you are still part of this community.
Grief after ALS can be intense, complicated, and different from what people expect. You may feel sadness, numbness, anger, relief, exhaustion, or all of it at once. There is no “right” way to grieve, and there is no timeline.

We offer a place for bereaved families in the Greater Toronto Area to connect, remember, and be supported gently and without pressure.

Grief after ALS can include:

The shock of quiet after months/years of caregiving
Feeling untethered after being “on duty” for so long
Mixed emotions that come and go
A sense that others don’t fully understand what ALS took

If any of this is true for you, you’re not doing it wrong. It’s part of what ALS leaves behind.

Connect with Us

Upcoming Events

What bereavement support can look like here

You deserve support that understands ALS—not only the loss, but everything that came before it.

A community that understands ALS loss

Space to talk with others who have experienced ALS caregiving and grief
Opportunities to connect without needing to “explain” your experience

Remembrance and honouring

Memorial moments at events (optional participation)
Ways to honour your person through stories, photos, tributes, or shared memories (only if you choose)

A gentle on-ramp back into community

You can attend events quietly, step out when needed, or simply stay connected online
You are welcome whether your loss was recent or years ago

What to expect

We want this to feel safe and respectful.

You choose how much you share
You can participate quietly—listening is participation
We protect privacy and never share personal details publicly without permission
We can help you find professional grief support if you want it

Next Steps

If you’re not sure what you need, try one of these:

Send a private note
Tell us: “I lost someone to ALS” + your preferred way to connect.
Come to a community event
You do not have to talk about grief unless you want to.

Support in Crisis

If you are feeling unsafe or thinking about harming yourself, please seek immediate help.

Call your local emergency number, or go to the nearest emergency department.
If you’re in the U.S. or Canada, you can call or text 988 for the Suicide & Crisis Lifeline.