Raising awareness for ALS while supporting ALS families and critical ALS research.
Newly Diagnosed with ALS
If ALS is new in your life, we’re glad you found us.
The early days can feel like a blur—appointments, decisions, and emotions you may not even have words for yet. You don’t have to navigate this alone.
ALS Double Play is a community for people living with ALS, caregivers, and loved ones in Greater Toronto Area. We’re here to offer connection, support, and a place to take the next step—at your pace.
A Quick Note About Who We Are
We are not a medical provider, and we don’t replace your neurologist or care team. We’re a community support organization—here for the parts that happen between appointments: isolation, overwhelm, practical questions, caregiver stress, and the need to talk to people who truly understand.
Who This Page is For
You’re in the right place if you are:
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Living with ALS and newly diagnosed
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A spouse/partner, adult child, parent, or friend supporting someone with ALS
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A caregiver who is suddenly juggling a lot
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Unsure what kind of help you need—just looking for a starting point
What ALS Double Play Can Offer You
Connection that doesn’t require explaining
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Supportive community gatherings where you can listen or share
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One-on-one connection (if available): peer support, introductions, or a welcome call
Caregiver support
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Caregiver meetups and support
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Practical tips from people who’ve been in it (daily routines, communication, navigating changes)
Local events and community
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Accessible events where families can show up without pressure
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Opportunities to connect with others nearby who “get it”
Stories and awareness (only if/when you want)
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Optional opportunities to share your story (privately, anonymously, or publicly—with your permission)
What to do Next
If everything feels overwhelming, you can start with one small step:
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Send a private message
Tell us what stage you’re in (newly diagnosed / caregiver / both). That’s enough.
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Come to one event—just to listen
You don’t have to share anything personal.
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Join our updates (optional)
We’ll send upcoming events and support opportunities.
What to Expect When You Reach Out
People often worry they’ll be asked to share details before they’re ready. Here’s what you can expect from us:
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We’ll respond with kindness and practical next steps
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You can share as much or as little as you want
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We’ll never post your story or personal information without explicit permission
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If we don’t know an answer, we’ll say so and help you find the right resource
If ALS is now part of your family’s story, you belong here.
When you’re ready, we’ll help you find community and a next step—without pressure.
Past ALS Ice Bucket Challenges
My Channel
My Channel
ALS Double Play's 2018 ALS Ice Bucket Challenge
Dr. Philip McGoldrick thank you
Abby invites you to make ALS history
